Episodes

Living with sarcoidosis is like starring in a medical drama no one else can see—one where you look perfectly fine on the outside while your organs do the cha-cha backstage. Back in 2011, when all of this felt new and terrifying, I kept most of it to myself. Now, looking back from 2025, I can’t help but revisit how invisible everything looked… especially to everyone who insisted I “didn’t look sick.” There’s a lot more to the story, but you’ll have to come inside for the rest. This podcast is na...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Between the dishes, the meds, and the chaos of chronic illness, it’s easy to wonder if you were meant for something bigger. But what if your true purpose isn’t grand at all—just one quiet, human act that changes everything? This heartfelt reflection explores finding meaning in small kindnesses while living with sarcoidosis and all of life’s messy imperfections. This podcast is narrated using an AI voice. The words, reflections, and ...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Living with chronic illness and heart failure has taught me one thing—complaining doesn’t fix a damn thing. As a chef juggling sarcoidosis, a leaky heart, and life’s general nonsense, I’ve learned that silence isn’t denial—it’s survival. Here’s how I stopped whining, started adapting, and found a strange kind of peace in just getting on with it. This podcast is narrated using an AI voice. The words, reflections, and lived experience...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Living with sarcoidosis is already its own exhausting full-time job, so the idea of a support group sounded…promising. Or at least not disastrous. But back in the early 2010s, when my lungs and heart were misbehaving like rebellious teenagers, the search for “people like me” turned into something far stranger than comforting. I won’t spoil the whole story here, but let’s just say it involved Christmas ornaments, long train rides, and...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Before my MRI next week, a simple online check-in turned into a bizarre quiz about my private life, sprinkled with the usual sarcoidosis-related precautions—but what came next left me blinking at the screen and wondering who exactly was getting scanned here. Let’s just say the questions took a turn I did not see coming. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Bo...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Sarcoidosis may steal your breath, your energy, and—if you’re lucky—your voice, but it can’t take your sense of humor. As a chef living with chronic illness and heart failure, I’ve learned to navigate breathing tests, inhalers, and vocal cord drama with sarcasm, garlic, and a pinch of grit. Here’s what happens when Symbicort and I go another round in the fight for air—and why I still keep cooking, writing, and laughing through it all...

This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research

At sixteen, a quiet walk home turned into the scariest night of my life — and the moment I found the fighter hiding inside me. What began as terror became transformation, proving that courage doesn’t wait for permission. This is the story of how I went from frozen in fear to running on pure fire. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: The Foundation For...

When your doctors of twenty years suddenly drop your insurance, sarcoidosis and heart failure become the least of your problems. Here’s what happens when loyalty meets bureaucracy, and why choosing between good doctors and great insurance feels like gambling with your health—and your sanity. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: The Foundation For Sarc...

On Veterans Day, I find myself thinking about the soldiers who fought in wars they never chose—especially the Vietnam vets who came home to rejection instead of honor. As someone living with sarcoidosis and heart failure, I understand battles that never really end. This is a personal thank-you to those who fought for a country that didn’t always fight for them. Comment here This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebe...