Welcome to Surviving Chronic Illness: Life in a Body That Rebels!

Episodes

Chronic Illness, Old Friends, and the Cost of Unequal Relationships
June 9, 2026

Chronic Illness, Old Friends, and the Cost of Unequal Relationships

Sometimes the most exhausting part of chronic illness isn’t the appointments, the symptoms, the insurance nonsense, or the daily negotiations with a body that refuses to behave. Sometimes it’s an old relationship that comes b...

Listen to the Episode
When Hospital Anxiety Shows Up After Years of Chronic Illness
June 5, 2026

When Hospital Anxiety Shows Up After Years of Chronic Illness

Medical trauma doesn’t always announce itself during the obvious terrifying moments. Sometimes it waits until an ordinary hospital visit, after routine blood work, when everything should feel familiar and manageable. This epi...

Listen to the Episode
What Three Stone Steps Taught Me About Chronic Illness Avoidance
June 2, 2026

What Three Stone Steps Taught Me About Chronic Illness Avoidance

Living with chronic illness is not always shaped by dramatic medical events. Sometimes it is shaped by the tiny detours we quietly build into our days. In this episode, I talk about realizing I had been avoiding three ordinar...

Listen to the Episode
MiniCast: The Hidden Side Effects of Prednisone No One Warns You About
May 29, 2026

MiniCast: The Hidden Side Effects of Prednisone No One Warns You About

Sometimes it is not the big symptoms that stop you in your tracks. It is the quiet ones. The bruises you cannot explain. The skin that tears a little too easily. Living with sarcoidosis and long term prednisone use means lear...

Listen to the Episode
Love, Caregiving, and Chronic Illness: The Spouse Who Helps You Survive
May 26, 2026

Love, Caregiving, and Chronic Illness: The Spouse Who Helps You Survi…

Living with chronic illness affects more than the person with the diagnosis. It changes marriage, caregiving, routines, fear, and the quiet emotional work shared inside a home. In this episode, I reflect on sarcoidosis, heart...

Listen to the Episode
Oxygen Therapy in Public and the Quiet Social Reality of Living with Sarcoidosis
May 22, 2026

Oxygen Therapy in Public and the Quiet Social Reality of Living with …

Wearing oxygen in public with sarcoidosis changes more than breathing. It changes the way people look at you, the way they try not to look at you, and the quiet assumptions they carry about what chronic illness is supposed to...

Listen to the Episode
The Waiting Room Anxiety Nobody Talks About:  Chronic Illness Test Results and Relief
May 19, 2026

The Waiting Room Anxiety Nobody Talks About: Chronic Illness Test Re…

Waiting for medical test results with chronic illness can feel like sitting through an awards show you never agreed to attend. Every pause carries weight, every glance feels loaded, and your mind fills in the blanks before an...

Listen to the Episode
The Guilt I Carried That Was Never Mine: Living with Chronic Illness and Letting Go
May 15, 2026

The Guilt I Carried That Was Never Mine: Living with Chronic Illness …

A moment from childhood can quietly shape how we carry guilt for decades. In this episode, I share the story of losing my stepfather at thirteen and the belief I carried for years that it was somehow my fault. Living with sar...

Listen to the Episode
Why “You Don’t Look Sick” Doesn’t Offend Me: Chronic Illness, Friendship, and Looking Fine When You’re Not
May 12, 2026

Why “You Don’t Look Sick” Doesn’t Offend Me: Chronic Illness, Friends…

Invisible illness can make ordinary social moments surprisingly complicated. A simple comment, a changed friendship, or a curious question can turn into an emotional negotiation when your body carries more than people can see...

Listen to the Episode
The Strange Math of Chronic Illness: What Sarcoidosis Taught Me About Expectations
May 8, 2026

The Strange Math of Chronic Illness: What Sarcoidosis Taught Me About…

People sometimes ask how anyone living with sarcoidosis can stay positive day after day. The answer isn’t motivation, inspiration, or some magical personality trait. It’s something quieter… something most people miss entirely...

Listen to the Episode
The Smoking Backpack: Chronic Illness in Public
May 5, 2026

The Smoking Backpack: Chronic Illness in Public

A doctor’s waiting room is usually boring. Mine briefly turned into a low-budget suspense film because my portable oxygen backpack looked like it was smoking. Living with sarcoidosis and chronic illness means getting used to ...

Listen to the Episode
MiniCast: When the Wild Speaks: The Night a Fox and a Crow Changed Everything
May 2, 2026

MiniCast: When the Wild Speaks: The Night a Fox and a Crow Changed Ev…

On a quiet sunset drive, I stumbled into a raw moment between a fox and a crow—two wild creatures locked in instinct and mystery. What began as an ordinary evening turned into a reflection on survival, intuition, and the stra...

Listen to the Episode
Getting an AICD: What the Surgery Felt Like From the Hospital Bed
May 1, 2026

Getting an AICD: What the Surgery Felt Like From the Hospital Bed

Getting an AICD implanted is not just a procedure. It is the moment heart failure stops sounding like a diagnosis on paper and starts feeling real in your body. In this episode, I share what it was actually like to hear I nee...

Listen to the Episode
The Day the Hospital Treated Me Like a Human Being
April 28, 2026

The Day the Hospital Treated Me Like a Human Being

Hospital visits can start to feel like rehearsed disappointment when you live with sarcoidosis, heart failure, and the long, exhausting reality of chronic illness. I know that feeling well. So when I went to Westchester Medic...

Listen to the Episode
MiniCast: Stop Saying You’re Allergic to Bees (When You’re Really Just Terrified of Nature)
April 25, 2026

MiniCast: Stop Saying You’re Allergic to Bees (When You’re Really Jus…

Ever wonder why everyone suddenly claims they’re “allergic to bees”? In this cheeky yet heartfelt take from a chef living with chronic illness, I explore what our bee phobia really says about fear, faith, and city folks who p...

Listen to the Episode
Why I Don’t Say I Suffer From Sarcoidosis
April 24, 2026

Why I Don’t Say I Suffer From Sarcoidosis

The words we use for chronic illness matter more than most people realize. In this episode, I reflect on a question my wife asked back in 2011, a question that changed the way I talk about sarcoidosis, heart failure, and illn...

Listen to the Episode
When Spring Returns to a Chronically Ill Body
April 21, 2026

When Spring Returns to a Chronically Ill Body

Spring has a way of looking hopeful while also trying to crawl directly into your sinuses. In this episode, I talk about what it means to live with sarcoidosis, heart issues, and the shifting realities of chronic illness thro...

Listen to the Episode
MiniCast: The Day I Danced with a Monarch: A Reminder That Nature Still Wins
April 18, 2026

MiniCast: The Day I Danced with a Monarch: A Reminder That Nature Sti…

After a week of rain and gray skies, I stepped outside and found myself face-to-face with a monarch butterfly—a rare, breathtaking sight that reminded me why we let dandelions grow and bees buzz in our yard. Here's why moment...

Listen to the Episode
CAR-T, Autoimmune Disease, and the Strange Hope of a One-Time Treatment
April 17, 2026

CAR-T, Autoimmune Disease, and the Strange Hope of a One-Time Treatme…

A treatment built for cancer is now doing something that sounds almost unreal in autoimmune disease. In this episode, I talk through a story about CAR-T cell therapy, a woman whose body had been attacking her from multiple di...

Listen to the Episode
You Didn’t Deserve This: Sarcoidosis, Shame, and Letting Go of Guilt
April 14, 2026

You Didn’t Deserve This: Sarcoidosis, Shame, and Letting Go of Guilt

What happens when chronic illness shows up and your first instinct is to blame yourself? In this episode of Thoughts While Surviving Chronic Illness , Tate reflects on growing up with guilt, being taught to question himself, ...

Listen to the Episode
When Insurance Says No: A Sarcoidosis Story About Unexpected Help
April 10, 2026

When Insurance Says No: A Sarcoidosis Story About Unexpected Help

Chronic illness teaches you that control is often an illusion. Tests, insurance approvals, medications, and diagnoses can feel like they belong to systems far bigger than the person living inside the body. For someone living ...

Listen to the Episode
Chronic Illness, Sarcoidosis, and the Absurdity of Racial Assumptions
April 7, 2026

Chronic Illness, Sarcoidosis, and the Absurdity of Racial Assumptions

After writing about winter tearing up my hands and posting a photo of my cracked, bleeding knuckles, I got an email that was less compassionate and more confused that I was not the race the sender expected. This episode is ab...

Listen to the Episode
When the New Pulmonologist Asked About a Lung Transplant, I Already Knew My Answer
April 3, 2026

When the New Pulmonologist Asked About a Lung Transplant, I Already K…

After insurance forced me to leave the pulmonologist who had known my lungs for twenty years, a brand-new doctor asked a question that hit me like a dropped skillet: had anyone discussed putting me on the transplant list? If ...

Listen to the Episode
Raised By Women, Tempered In Kitchens:How Respect Became My Quiet Rebellion (and Why I’m Done Laughing Along)
March 31, 2026

Raised By Women, Tempered In Kitchens:How Respect Became My Quiet Reb…

I learned respect the slow way—by watching what happened when women spoke and men decided they were “too much.” By listening in kitchens where the food mattered more than the people making it. And by living long enough with s...

Listen to the Episode