Sarcoidosis Insights Episodes

Living with sarcoidosis is like starring in a medical drama no one else can see—one where you look perfectly fine on the outside while your organs do the cha-cha backstage. Back in 2011, when all of this felt new and terrifying, I kept most of it to myself. Now, looking back from 2025, I can’t help but revisit how invisible everything looked… especially to everyone who insisted I “didn’t look sick.” There’s a lot more to the story, but you’ll have to come inside for the rest. This podcast is na...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Living with sarcoidosis is already its own exhausting full-time job, so the idea of a support group sounded…promising. Or at least not disastrous. But back in the early 2010s, when my lungs and heart were misbehaving like rebellious teenagers, the search for “people like me” turned into something far stranger than comforting. I won’t spoil the whole story here, but let’s just say it involved Christmas ornaments, long train rides, and...

Welcome to A Body Rebels, formerly Surviving Chronic Illness. Sarcoidosis may steal your breath, your energy, and—if you’re lucky—your voice, but it can’t take your sense of humor. As a chef living with chronic illness and heart failure, I’ve learned to navigate breathing tests, inhalers, and vocal cord drama with sarcasm, garlic, and a pinch of grit. Here’s what happens when Symbicort and I go another round in the fight for air—and why I still keep cooking, writing, and laughing through it all...

When your doctors of twenty years suddenly drop your insurance, sarcoidosis and heart failure become the least of your problems. Here’s what happens when loyalty meets bureaucracy, and why choosing between good doctors and great insurance feels like gambling with your health—and your sanity. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: The Foundation For Sarc...

On Veterans Day, I find myself thinking about the soldiers who fought in wars they never chose—especially the Vietnam vets who came home to rejection instead of honor. As someone living with sarcoidosis and heart failure, I understand battles that never really end. This is a personal thank-you to those who fought for a country that didn’t always fight for them. Comment here This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebe...

Living with sarcoidosis and heart failure has taught me many things—chief among them? Asking for help often leads to more stress than it’s worth. If you’re chronically ill, fiercely independent, or just tired of being disappointed by well-meaning offers gone sideways, this one’s for you. Subscribe or comment here This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: T...

As a chef battling sarcoidosis and heart failure, debris from a life that refuses to behave, I’m here to tell you why Halloween — creepy skeletons, gore-fest lawns, serial-killer mannequin dioramas and all — feels wrong in a way that psychology backs up. If you’ve ever felt alienated by the “fun” of Halloween or want to understand why it grates on your nerves (and mine), read on for a mix of sarcasm, heart, and insight into fear, ritual and chronic illness living. To leave a comment, please go ...

Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity. Here’s how staying calm transformed my life, my work, and even landed me a management job. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to dona...

Welcome to A Body Rebels: A Chronic Illness Podcast, Formerly Surviving Chronic Illness. If you’re juggling a chronic illness, creative ambitions and ordinary life chaos—you’re in the right place. Let’s talk survival, cooking, writing and finding hope in the hidden kitchen of chronic illness. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: The Foundation For Sar...

Welcome to A Body Rebels formerly Surviving Chronic Illness. Nineteen years after my sarcoidosis diagnosis, I’m finally sharing the story of my open lung biopsy—the surgery that changed everything. From failed bronchoscopy to five hours on the operating table, this brutally honest account reveals what recovery from an open lung biopsy really feels like. If you’re preparing for surgery or living with sarcoidosis, here’s the unfiltered truth doctors rarely mention. This podcast is narrated using ...