Dec. 1, 2025

Why I Walked Away From Support Groups (And Found My Voice Instead)

Why I Walked Away From Support Groups (And Found My Voice Instead)
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Living with sarcoidosis is already its own exhausting full-time job, so the idea of a support group sounded…promising. Or at least not disastrous. But back in the early 2010s, when my lungs and heart were misbehaving like rebellious teenagers, the search for “people like me” turned into something far stranger than comforting. I won’t spoil the whole story here, but let’s just say it involved Christmas ornaments, long train rides, and me realizing the person I actually needed to find was somewhere else entirely. Maybe someone like you.

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This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own.

To respond to this episode, use the text link in the episode notes, or send longer messages through the contact form at tatebasildon.com. I’m not able to respond to solicitations, outside projects, or interview requests.

To support sarcoidosis research or learn more, please visit The Foundation For Sarcoidosis Research