Sarcoidosis Insights Episodes

What happens when chronic illness shows up and your first instinct is to blame yourself? In this episode of Thoughts While Surviving Chronic Illness, Tate reflects on growing up with guilt, being taught to question himself, and how that old wiring followed him into life with sarcoidosis. This is a quiet, honest conversation about shame, fear, faith, and the heavy stories we attach to illness. If you have ever wondered whether you caused your condition, deserved your suffering, or somehow failed ...

Chronic illness teaches you that control is often an illusion. Tests, insurance approvals, medications, and diagnoses can feel like they belong to systems far bigger than the person living inside the body. For someone living with sarcoidosis and heart complications, routine medical tests are never really routine. They can determine whether the disease is quiet… or quietly returning. But every once in a while something unexpected happens. A phone call. A decision made by someone behind the sc...

After writing about winter tearing up my hands and posting a photo of my cracked, bleeding knuckles, I got an email that was less compassionate and more confused that I was not the race the sender expected. This episode is about sarcoidosis, chronic illness, medical stereotypes, and the exhausting way people reduce human beings to categories instead of meeting them with empathy. It is about what happens when statistics stop being information and start becoming assumptions, and why people living ...

After insurance forced me to leave the pulmonologist who had known my lungs for twenty years, a brand-new doctor asked a question that hit me like a dropped skillet: had anyone discussed putting me on the transplant list? If you live long enough with sarcoidosis and serious lung disease, transplant eventually enters the room. But hearing the question and wanting the answer to be yes are not the same thing. This episode is about that first appointment, the shock of being asked so bluntly, and why...

I learned respect the slow way—by watching what happened when women spoke and men decided they were “too much.” By listening in kitchens where the food mattered more than the people making it. And by living long enough with sarcoidosis and heart failure to realize time is expensive, energy is limited, and “just ignore it” is the laziest advice on earth. This isn’t a victory speech or a halo-polishing session. It’s the story of how a kid who stayed quiet learned when silence starts sounding like ...

A new study claims low vitamin D may drive inflammation—but if you live with sarcoidosis, the story gets more complicated. Before reaching for supplements, there’s something important many headlines leave out. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research

A simple story about a pillow full of feathers has been told for centuries by rabbis, monks, and priests. I heard it once on the radio and it stuck with me—especially as someone living with sarcoidosis, where words from doctors, strangers, and even ourselves can linger longer than we realize. But the real lesson in the story isn’t what you think. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosi...

Sometimes sarcoidosis whispers instead of shouts. Someone can appear perfectly healthy, living their life, planning tomorrow… while something dangerous quietly hides in the heart. This episode reflects on a recent tragedy, a strange twist of fate, and the thin line between what doctors find… and what they don’t. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis and to donate toward research: Th...

I read a lot of chronic illness blogs—part coping strategy, part writerly snooping—and I keep running into the same pattern: the urge to turn suffering into a spiritual trophy. Living with sarcoidosis has taught me faith can be a lifeline, but it can also become a convenient little crutch… the kind that looks holy while quietly stealing your agency. This one might make you laugh, sigh, or clutch your pearls—possibly all three. This podcast is narrated using an AI voice. The words, reflections, ...

Ever notice how sarcoidosis doesn’t just come for your lungs (or your heart, if it’s feeling ambitious)—it comes for your calendar, your energy, and your bank account too? This is the story of what “good insurance” looks like when the bills have six digits, the premiums creep up like a horror-movie soundtrack, and you realize staying alive in America is a subscription plan you never asked for… but can’t cancel. This podcast is narrated using an AI voice. The words, reflections, and lived experi...