"Surviving Chronic Illness" is now "A Body Rebels"

Episodes

9
April 18, 2026

MiniCast: The Day I Danced with a Monarch: A Reminder That Nature Still Wins

After a week of rain and gray skies, I stepped outside and found myself face-to-face with a monarch butterfly—a rare, breathtaking sight that reminded me why we let dandelions grow and bees buzz in our yard. Here's why moments like these mean everything when you're living with chronic illness and still trying to find joy in the little things. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels More info about Sarcoidosis an...
8
April 17, 2026

CAR-T, Autoimmune Disease, and the Strange Hope of a One-Time Treatment

A treatment built for cancer is now doing something that sounds almost unreal in autoimmune disease. In this episode, I talk through a story about CAR-T cell therapy, a woman whose body had been attacking her from multiple directions, and the uneasy hope that comes with hearing the words remission, reset, and maybe even recovery. This isn’t a miracle story, because real bodies are messier than that. But it is a story about what it means when medicine stops just managing suffering and starts aski...
7
April 14, 2026

You Didn’t Deserve This: Sarcoidosis, Shame, and Letting Go of Guilt

What happens when chronic illness shows up and your first instinct is to blame yourself? In this episode of Thoughts While Surviving Chronic Illness, Tate reflects on growing up with guilt, being taught to question himself, and how that old wiring followed him into life with sarcoidosis. This is a quiet, honest conversation about shame, fear, faith, and the heavy stories we attach to illness. If you have ever wondered whether you caused your condition, deserved your suffering, or somehow failed ...
6
April 10, 2026

When Insurance Says No: A Sarcoidosis Story About Unexpected Help

Chronic illness teaches you that control is often an illusion. Tests, insurance approvals, medications, and diagnoses can feel like they belong to systems far bigger than the person living inside the body. For someone living with sarcoidosis and heart complications, routine medical tests are never really routine. They can determine whether the disease is quiet… or quietly returning. But every once in a while something unexpected happens. A phone call. A decision made by someone behind the sc...
5
April 7, 2026

Chronic Illness, Sarcoidosis, and the Absurdity of Racial Assumptions

After writing about winter tearing up my hands and posting a photo of my cracked, bleeding knuckles, I got an email that was less compassionate and more confused that I was not the race the sender expected. This episode is about sarcoidosis, chronic illness, medical stereotypes, and the exhausting way people reduce human beings to categories instead of meeting them with empathy. It is about what happens when statistics stop being information and start becoming assumptions, and why people living ...
4
April 3, 2026

When the New Pulmonologist Asked About a Lung Transplant, I Already Knew My Answer

After insurance forced me to leave the pulmonologist who had known my lungs for twenty years, a brand-new doctor asked a question that hit me like a dropped skillet: had anyone discussed putting me on the transplant list? If you live long enough with sarcoidosis and serious lung disease, transplant eventually enters the room. But hearing the question and wanting the answer to be yes are not the same thing. This episode is about that first appointment, the shock of being asked so bluntly, and why...
3
March 31, 2026

Raised By Women, Tempered In Kitchens:How Respect Became My Quiet Rebellion (and Why I’m Done Laughing Along)

I learned respect the slow way—by watching what happened when women spoke and men decided they were “too much.” By listening in kitchens where the food mattered more than the people making it. And by living long enough with sarcoidosis and heart failure to realize time is expensive, energy is limited, and “just ignore it” is the laziest advice on earth. This isn’t a victory speech or a halo-polishing session. It’s the story of how a kid who stayed quiet learned when silence starts sounding like ...
2
March 27, 2026

The Dad Who Showed Up: Grief, Sarcoidosis, and the Inheritance of Dark Humor

When you grow up learning who doesn’t show up, you start measuring love in smaller, sharper ways—like footsteps on a porch, a hand on your forehead at the school nurse’s office, or the kind of laughter that keeps you upright when your body (hello, sarcoidosis) is acting like it pays rent. This is about the dad I lost too soon—the one who earned the title—and the strange little lessons that followed me into adulthood… right up to cardiology appointments and the moments I have to decide whether I’...
1
March 24, 2026

When My Heart Rebelled for Two Minutes—and My AICD Decided to Stay Employed

Some people collect souvenirs when they travel. I collect medical printouts. One routine cardiology visit handed me a neat little report, the kind that looks boring until you realize it’s basically a receipt for a moment your body tried to freestyle without permission. If you live with sarcoidosis and heart failure, you already know the feeling: you can be doing something painfully normal, and then your insides decide to audition for a disaster movie. This is the story of the day my heart tested...